Saturday, April 27, 2013

technical help

I finally tracked down a help group

After the annual extra-large-family- gathering at Easter time, where one can spend four days literally catching up with nothing in particular but renew kinships at the same time, I was persuaded to join up with a MS help group by my aunt, a long term MS sufferer.

"Aunty" * showed me a Copaxone Injector Kit that looked pretty awesome in it's use. No needle shock as it were and easy to use. She made me practise a lot with a done syringe for half an hour. Even then, by myself using the kit, I still forgot to remove the red cap- wasteful- all over the floor when I realised. But then, I have wasted two others too! Anyway.

Some prehistory- just a few weeks before, up early like 5am for work and I was doing the self injecting thing, and not really noticing how I was holding the dang thing, and must have paused and drew back some-a little bit- blood back- Well when I realised THAT it looked like a red blob in the syringe- I went- CONTAMINATION ARFHGH$%^! Dummy! I took the needle out almost straight away and went into a calamity-oh-WTF-is-going-to-happen mode, and went and laid down on my bed.
I was feeling weak.
Then hot.
Could I call out to the kids?
No- was instantly asthmatic!
Spasms wracked my baddish back most intently.
Needed to evacuate the bottom end.
In the rush to the loo, there was an urge to throw up as well.
Get there, hot, cold, shakey,

Creaked my way back to the bed over-thinking  what can I do? Aids? How did the thing get through quality control etc etc.

Anyway- ten minutes later or so- felt fine, like a plague had not got me feeling so weird,  not contaminated with an instant deadly virus after all!

When back at work, I did the quick rounds later on, of "Help me" type calls: the pharmacist and aunty, and they said- "shock is all, probably happen a few times the next few years, just a typical reaction".

Me- sure...

Oh yes, I do remember reading that too...

Anyway- back to Easter- my aunt encouraged me to grab a help bag kit- "autoinject2". Alright.

I had previously sent off to the Copaxone Help group, but the Join Us note had Never Arrived I was to find out.

I called the help line on the mobile phone at lunch time the Friday after Easter- leaving a message that I had tried to get in touch in November...?

A few hours late, a call back.  From "Pip! Call me Pip!" And how could she help me?

Well- my life story and a bit of quiet shock from the other end and then a pat on the back for how well I was going all by myself- but now she knew what to do for me, and would be keeping in touch and sending a help-pack and all.

Help pack with auto-inject kit arrived by HDL special delivery----

MONDAY morning!

And a few weeks later a call back.

That's great. Just need to attend the MS groups that meet around here at odd times- I completely forgot the last one.

Ah well. Not taking the MS thing lying down, but then it has not really knocked me about that much, like some people I know now- speaking of which- NS and camcer did take Chrissie Amplett of the Divinyls way the other week, that was sad as she was from over the Bay from me as a kid and my age about. Bugger.

Still walking and talking, I still have the odd tingles below the waist, but not as intensely as the initial feelings, nor has the eye sight been affected again, but then, nor has the left eye completely recovered, but I can type this so it must be getting better.

By the way, I have just finished reading a few great books or three on my Kindle#2-
"Power,Sex Suicide : Mitochondria and the meaning of life" by Nick Lane and
"Life's Ratchet : How Molecular Machines Extract Order From Chaos" by Peter F. Hoffman.
That was a few intense weeks I tell you! Highly recommended to everyone.

*And she probably might hate that moniker as she is only 12 years older than me!

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